#13 Surgery Update

Today was one of the most agonizing days of our lives - pleading with Heavenly Father for a miracle if it be His will to grant it. We were blessed tonight with the best news we could have possibly received. Originally the doctors said it was "highly unlikely" that they wouldn't take out her gluteal muscles. Today the gluteal muscles still looked pale and were not responding to stimulus, but they were not dead. They left everything there. Nothing was removed! The tissue surrounding the muscle all looked healthy. We are feeling cautiously hopeful that things will be okay with her glutes. We are so grateful right now we can't even tell you!!! We are cautiously hopeful going into this weekend that her muscle will remain viable and that she will be able to keep that muscle that is so important for her comfort in this life. 

During her surgery today, they put in a temporary tracheostomy to get her through the rest of her surgeries.  Now she'll be able to communicate much better!!! They will put a T-piece in the trach tomorrow after the swelling in her throat goes down, so that she can talk. This also means that she doesn't have to be so sedated and she will be much more alert! She will still be on pain medication so she can be comfortable.

We fasted and prayed for this news today and are grateful for all others that are also praying for Sarah. Today this was music to our ears. Thank you thank you!!!! We still need miracles and we don't doubt they will happen!!!


Comments

  1. Such wonderful news! We haven’t forgotten Sarah or your family. Every morning and night we speak of you to Heavenly Father.

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  2. I’m so happy to hear this! Your smiles are inspirational! Love you Frei Family. 🤟🏻 Blessing and miracles are so deserved!

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  3. Happy tears!!!! Tender mercies from above! We love you all SO much! Constantly praying!❤️

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  4. We are always praying for her. Please post when you need us to fast as well. I would have fasted again today for her if I have known. Love that girl so much!

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  5. I have prayed every day for a miracle. God is truly good.

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  6. So grateful to hear this positive news for beautiful Sarah and your sweet family. I also am so grateful your mom and dad could both be there together with her. Her smile is radiant and continued prayers for the blessings and miracles needed!!

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  7. Miracles will still coming. No doubt 🤟🏻

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  8. Amazing!!! Such wonderful news!!

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  9. Good news. I will pray for a mighty miracle for her glute muscles and for her body to heal. She is a survivor and loved by so many. Also will pray for her mom and dad for comfort and peace and for her siblings too.

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  10. A total miracle. Many prayers were said today - lots of them by the little kids - and it was so sweet to feel the spirit as they prayed for sarah. So grateful for today’s news. Keep the good news coming! 🙏🏻💙🤟🏻

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  11. Look at all of your smiles! ❤️

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  12. So grateful & happy to hear this good news. We will continue to pray for Sarah, her family & her team of doctors and caretakers.❤🙏🏻❤

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  13. I love reading all these comments- no one is forgetting Sarah!!!! So many miracles yet to come!

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  14. Oh I've been waiting for this up date all day! I basically haven't stopped praying! Go Sarah! I will keep hoping for more good news. To see both parents together in her room brought a tear to my eyes! And that she'll be able to talk soon....that will be amazing.

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  15. I love all of your smiles! We've been praying for those glutes!

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  16. To see the three of you together with those beautiful smiles is priceless. I'm praying for your sweet Sarah. Love you all!💜💜💜

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  17. Replies
    1. We are so happy for you! We are continuing to pray for you!♥️ Brian and Denise Seegmiller

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  18. What a beautiful smile she has! I’m still praying for her every day! ❤️

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  19. Beautiful! Neat to hear of your faith and testimonies. So happy to see all your smiling faces. Glad for the many miracles. Trusting and praying that there will be many more. May God continue to hear the many prayers for keeping the gluteal muscles. So happy that Sarah will be able to finally communicate with words to you! You are in our constant thoughts and prayers.

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  20. We are so happy to hear the good news today. Our whole family is praying for her. We enjoy reading the updates. We are worried about her. This is a great picture, it is nice to see Sarah and her parents smiling. Good luck. We are all on Team Sarah!!!!!

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  21. So thankful for the daily miracles! We will continue to pray.

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  22. I wanted you to know that I can't fast by giving up food and water so I decided that would not play any games on my phone until Sarah is released from the hospital, as my way of fasting. I did this after reading about her gluteal issues and wanted to do something. I have been praying specifically for her gluteal muscles and thighs, and include prayers for her overall health as I saw she had an infection last week. I know there are miracles and Heavenly Father is watching over His dear daughter. --Angela Dilley

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